How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?

Ellen Wright Clayton

doi:10.1111/jlme.12296

How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?

J Law Med Ethics. 2015 Fall;43(3):538-44. doi: 10.1111/jlme.12296.

Author

Ellen Wright Clayton¹

Affiliation

¹ Craig-Weaver Professor of Pediatrics, Professor of Law, Professor of Health Policy, and Co-Founder of the Center for Biomedical Ethics and Society at Vanderbilt University. She obtained her B.S. from Duke University, her M.S. from Stanford University, her J.D. from Yale Law School, and her M.D. from Harvard Medical School.

Abstract

Adolescents may often have opinions about whether they want genetic and genomic testing in both the clinic and research and about who should have access to the results. This legal analysis demonstrates that the law provides very little protection to minors' wishes.

Publication types

Research Support, N.I.H., Extramural

MeSH terms

Access to Information / ethics
Access to Information / legislation & jurisprudence*
Adolescent
Adult
Child
Communication*
Death
Disclosure / ethics
Disclosure / legislation & jurisprudence*
Genetic Testing / ethics
Genetic Testing / legislation & jurisprudence*
Genomics / ethics
Genomics / legislation & jurisprudence*
Humans
Minors / legislation & jurisprudence*
Parents*
Patient Rights / ethics
Patient Rights / legislation & jurisprudence*
Refusal to Participate / ethics
Refusal to Participate / legislation & jurisprudence

Abstract

Publication types

MeSH terms

Grants and funding