International spinal cord injury urodynamic basic data set (version 2.0)

Jürgen Pannek; Michael Kennelly; Thomas M Kessler; Todd Linsenmeyer; Jean-Jacques Wyndaele; Fin Biering-Sørensen

doi:10.1038/s41394-018-0133-0

International spinal cord injury urodynamic basic data set (version 2.0)

Spinal Cord Ser Cases. 2018 Nov 1:4:98. doi: 10.1038/s41394-018-0133-0. eCollection 2018.

Authors

Jürgen Pannek¹, Michael Kennelly², Thomas M Kessler³, Todd Linsenmeyer^{4

5}, Jean-Jacques Wyndaele⁶, Fin Biering-Sørensen⁷

Affiliations

¹ 1Neuro-Urology, Swiss Paraplegic Centre, Nottwil, Switzerland.
² 2Carolinas Rehabilitation, Carolinas Healthcare System, Charlotte, NC USA.
³ 3Neuro-Urology, Spinal Cord Injury Center and Research, Balgrist University Hospital, University of Zürich, Zürich, Switzerland.
⁴ 4Urology Department, Kessler Institute for Rehabilitation, W. Orange, NJ USA.
⁵ 5Departments Surgery (Urology) and PM&R, Rutgers New Jersey Medical School, Newark, NJ USA.
⁶ 6University Antwerp, Antwerp, Belgium.
⁷ 7Clinic for Spinal Cord Injuries, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.

Abstract

Study design: Revision, review, and presentation of the International Spinal Cord Injury (SCI) Urodynamic Basic Data Set (version 2.0).

Objectives: Describe the revision and review and present the dataset.

Setting: International.

Methods: The first version of the dataset was revised according to new knowledge and suggestions. The review included International SCI Data Sets Committee, American Spinal Injury Association (ASIA) board, International Spinal Cord Society (ISCoS) executive and scientific committees, major organizations, and interested individuals. The dataset was also on ASIA and ISCoS websites. All replies were answered and appropriate adjustments made. Finally, the dataset was endorsed by ASIA board, and ISCoS executive and scientific committees.

Results: Among revisions are adoptions of new terminology by the International Continence Society. The variable "Detrusor function" has been divided into "Detrusor function during filling cystometry" and "Detrusor function during voiding". The response categories have been adjusted, deleting 'Not applicable' for the variables "Detrusor leak point pressure during filling cystometry", "Cystometric bladder capacity during filling cystometry" and "Urethral function during voiding". The cutoff-value for low bladder compliance has been modified from 10 mL/cm H₂O to 20 mL/cm H₂O.

Conclusions: The International SCI Urodynamic Basic Data Set (version 2.0) with its complete syllabus is available from http://www.iscos.org.uk/international-sci-data-sets.