Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications

Per Med. 2021 May;18(3):209-212. doi: 10.2217/pme-2021-0016. Epub 2021 Mar 17.

Authors

Hadley Stevens Smith¹, Amy L McGuire¹, Eve Wittenberg², Tara A Lavelle³

Affiliations

¹ Center for Medical Ethics & Health Policy, Baylor College of Medicine, Houston, TX 77030, USA.
² Center for Health Decision Science, Harvard TH Chan School of Public Health, Boston, MA 02115, USA.
³ Center for the Evaluation of Value & Risk in Health (CEVR), Institute for Clinical Research & Health Policy Studies, Tufts Medical Center, Boston, MA 02111, USA.

Abstract

Tweetable abstract Health economics and ELSI can be better integrated to consider the family impacts of genetic and genomic testing.

Keywords: ELSI; cascade screening; clinical implementation; cost–effectiveness; evaluation; family; patient-centered.

Publication types

Editorial
Research Support, N.I.H., Extramural

MeSH terms

Cost-Benefit Analysis
Economics, Medical / organization & administration*
Ethics, Medical*
Family*
Genetic Testing / economics
Genetic Testing / methods*
Humans
Interdisciplinary Research
Legislation, Medical*

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