YouTube as a Source of Patient Education for Transcranial Craniosynostosis Procedures

Cleft Palate Craniofac J. 2023 Sep;60(9):1135-1139. doi: 10.1177/10556656221093292. Epub 2022 Apr 11.

Abstract

Introduction: The internet has improved access to knowledge, with a reported 72% of internet users accessing health information online. YouTube is the most popular video-sharing website and is a frequently accessed source for health information. There are concerns, however, that patients and carers may be unable to identify and filter for trustworthy sources of information on these platforms. This study aimed to assess the quality of videos that are likely to be accessed when families search YouTube for transcranial procedures for the management of craniosynostosis.

Methodology: This was a cross-sectional, observational study that evaluated YouTube videos when searching for "fronto-orbital advancement" or "cranial vault remodeling." The first 25 videos for each term were included. Videos were assessed for quality using the previously validated JAMA and DISCERN scoring tools.

Results: There was low interobserver variability for the scoring tools used. There was no statistically significant correlation between the video quality and any video characteristics assessed. Videos published by organizations had higher mean quality scores for both the JAMA and DISCERN tools when compared to surgeon, patient, or medical device company-produced videos.

Conclusion: This study showed that searching YouTube for fronto-orbital advancement and cranial vault remodeling yields videos of low quality and therefore patients and carers should be discouraged from "YouTube-ing" these procedures. Platforms such as YouTube may provide an opportunity for craniofacial units to create and disseminate high-quality educational videos to complement routine perioperative education.

Keywords: pediatrics; social support; synostosis.

Publication types

  • Observational Study

MeSH terms

  • Craniosynostoses* / surgery
  • Cross-Sectional Studies
  • Humans
  • Information Dissemination / methods
  • Patient Education as Topic
  • Social Media*
  • Video Recording / methods