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Attitudes of publics who are unwilling to donate DNA data for research.
Middleton A, Milne R, Thorogood A, Kleiderman E, Niemiec E, Prainsack B, Farley L, Bevan P, Steed C, Smith J, Vears D, Atutornu J, Howard HC, Morley KI. Middleton A, et al. Among authors: niemiec e. Eur J Med Genet. 2019 May;62(5):316-323. doi: 10.1016/j.ejmg.2018.11.014. Epub 2018 Nov 23. Eur J Med Genet. 2019. PMID: 30476628 Free PMC article.
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.
Milne R, Morley KI, Howard H, Niemiec E, Nicol D, Critchley C, Prainsack B, Vears D, Smith J, Steed C, Bevan P, Atutornu J, Farley L, Goodhand P, Thorogood A, Kleiderman E, Middleton A; Participant Values Work Stream of the Global Alliance for Genomics and Health. Milne R, et al. Among authors: niemiec e. Hum Genet. 2019 Dec;138(11-12):1237-1246. doi: 10.1007/s00439-019-02062-0. Epub 2019 Sep 17. Hum Genet. 2019. PMID: 31531740 Free PMC article.
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.
Middleton A, Milne R, Howard H, Niemiec E, Robarts L, Critchley C, Nicol D, Prainsack B, Atutornu J, Vears DF, Smith J, Steed C, Bevan P, Scott ER, Bobe J, Goodhand P, Kleiderman E, Thorogood A, Morley KI; Participant Values Work Stream of the Global Alliance for Genomics and Health. Middleton A, et al. Among authors: niemiec e. Eur J Hum Genet. 2020 Apr;28(4):424-434. doi: 10.1038/s41431-019-0550-y. Epub 2019 Nov 29. Eur J Hum Genet. 2020. PMID: 31784701 Free PMC article.
35 results