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Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.
Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P; APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD). Van Bulck L, et al. Among authors: thomet c. Int J Cardiol. 2022 Sep 15;363:30-39. doi: 10.1016/j.ijcard.2022.06.064. Epub 2022 Jun 30. Int J Cardiol. 2022. PMID: 35780933 Free article.
Challenges of congenital heart disease in grown-up patients.
Schwerzmann M, Schwitz F, Thomet C, Kadner A, Pfammatter JP, Wustmann K. Schwerzmann M, et al. Among authors: thomet c. Swiss Med Wkly. 2017 Sep 30;147:w14495. doi: 10.4414/smw.2017.14495. eCollection 2017. Swiss Med Wkly. 2017. PMID: 28975959 Free article.
Staffing, activities, and infrastructure in 96 specialised adult congenital heart disease clinics in Europe.
Thomet C, Moons P, Budts W, De Backer J, Chessa M, Diller G, Eicken A, Gabriel H, Gallego P, Giamberti A, Roos-Hesselink J, Swan L, Webb G, Schwerzmann M; ESC Working Group on Grown-up Congenital Heart Disease. Thomet C, et al. Int J Cardiol. 2019 Oct 1;292:100-105. doi: 10.1016/j.ijcard.2019.04.077. Epub 2019 Apr 26. Int J Cardiol. 2019. PMID: 31085084 Free article.
Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.
Van Bulck L, Goossens E, Luyckx K, Apers S, Oechslin E, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Van Bulck L, et al. Among authors: thomet c. BMC Health Serv Res. 2020 Jun 3;20(1):496. doi: 10.1186/s12913-020-05361-9. BMC Health Serv Res. 2020. PMID: 32493367 Free PMC article.
Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease (ISACHD).
Schwerzmann M, Goossens E, Gallego P, Kovacs AH, Moons P, Swan L, Tobler D, de Stoutz N, Gabriel H, Greutmann M, Roos-Hesselink JW, Sobanski PZ, Thomet C. Schwerzmann M, et al. Among authors: thomet c. Eur Heart J. 2020 Nov 14;41(43):4200-4210. doi: 10.1093/eurheartj/ehaa614. Eur Heart J. 2020. PMID: 32862229 Free article.
Transfer and transition practices in 96 European adult congenital heart disease centres.
Thomet C, Schwerzmann M, Budts W, De Backer J, Chessa M, Diller G, Eicken A, Gabriel H, Gallego P, Giamberti A, Roos-Hesselink J, Swan L, Webb G, Moons P; ESC Working Group on Grown-up Congenital Heart Disease. Thomet C, et al. Int J Cardiol. 2021 Apr 1;328:89-95. doi: 10.1016/j.ijcard.2020.11.031. Epub 2020 Dec 1. Int J Cardiol. 2021. PMID: 33276020 Free article.
Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods.
Apers S, Kovacs AH, Luyckx K, Alday L, Berghammer M, Budts W, Callus E, Caruana M, Chidambarathanu S, Cook SC, Dellborg M, Enomoto J, Eriksen K, Fernandes SM, Jackson JL, Johansson B, Khairy P, Kutty S, Menahem S, Rempel G, Sluman MA, Soufi A, Thomet C, Veldtman G, Wang JK, White K, Moons P; APPROACH-IS consortium; International Society for Adult Congenital Heart Disease (ISACHD). Apers S, et al. Among authors: thomet c. Int J Cardiol. 2015 Jan 20;179:334-42. doi: 10.1016/j.ijcard.2014.11.084. Epub 2014 Nov 8. Int J Cardiol. 2015. PMID: 25464481 Free article. Clinical Trial.
Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific Characteristics.
Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Romfh AW, White K, Callus E, Kutty S, Fieuws S, Moons P; APPROACH-IS consortium and ISACHD. Apers S, et al. Among authors: thomet c. J Am Coll Cardiol. 2016 May 17;67(19):2237-2245. doi: 10.1016/j.jacc.2016.03.477. J Am Coll Cardiol. 2016. PMID: 27173035 Free article.
47 results