Denger B - Search Results

1

Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol.

Khodyakov D, Kinnett K, Grant S, Lucas A, Martin A, Denger B, Peay H, Coulter I, Fink A. Khodyakov D, et al. Among authors: denger b. JMIR Res Protoc. 2017 Apr 28;6(4):e57. doi: 10.2196/resprot.6902. JMIR Res Protoc. 2017. PMID: 28455279 Free PMC article.

2

Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy.

Denger B, Kinnett K, Martin A, Grant S, Armstrong C, Khodyakov D. Denger B, et al. Orphanet J Rare Dis. 2019 Aug 20;14(1):205. doi: 10.1186/s13023-019-1173-7. Orphanet J Rare Dis. 2019. PMID: 31429780 Free PMC article.

3

Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development.

Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Peay H, Coulter I. Khodyakov D, et al. Among authors: denger b. Patient. 2020 Feb;13(1):11-21. doi: 10.1007/s40271-019-00389-4. Patient. 2020. PMID: 31544219 Free PMC article.

4

Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations.

Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Booth M, Armstrong C, Dao E, Chen C, Coulter I, Peay H, Hazlewood G, Street N. Khodyakov D, et al. Among authors: denger b. Med Decis Making. 2019 Nov;39(8):1019-1031. doi: 10.1177/0272989X19883631. Epub 2019 Nov 13. Med Decis Making. 2019. PMID: 31722623 Free PMC article.

5

The RAND/PPMD Patient-Centeredness Method: a novel online approach to engaging patients and their representatives in guideline development.

Khodyakov D, Denger B, Grant S, Kinnett K, Armstrong C, Martin A, Peay H, Coulter I, Hazlewood G. Khodyakov D, et al. Among authors: denger b. Eur J Pers Cent Healthc. 2019;7(3):470-475. Epub 2019 Nov 21. Eur J Pers Cent Healthc. 2019. PMID: 34277012 Free PMC article.

6

Participant experiences with a new online modified-Delphi approach for engaging patients and caregivers in developing clinical guidelines.

Armstrong C, Grant S, Kinnett K, Denger B, Martin A, Coulter I, Booth M, Khodyakov D. Armstrong C, et al. Among authors: denger b. Eur J Pers Cent Healthc. 2019;7(3):476-489. Eur J Pers Cent Healthc. 2019. PMID: 34422276 Free PMC article.

7

A Mixed-Method Study Exploring Patient-Experienced and Caregiver-Reported Benefits and Side Effects of Corticosteroid Use in Duchenne Muscular Dystrophy.

Fischer R, Porter K, Donovan JM, Scavina MT, Armstrong N, Denger B, Hasham S, Peay H. Fischer R, et al. Among authors: denger b. J Neuromuscul Dis. 2023;10(4):593-613. doi: 10.3233/JND-221617. J Neuromuscul Dis. 2023. PMID: 37182893 Free PMC article.

8

Report on the Second Endocrine Aspects Of Duchenne Muscular Dystrophy Conference December 1-2, 2010, Baltimore, Maryland, USA.

Leung DG, Germain-Lee EL, Denger BE, Wagner KR. Leung DG, et al. Among authors: denger be. Neuromuscul Disord. 2011 Aug;21(8):594-601. doi: 10.1016/j.nmd.2011.04.008. Epub 2011 Jul 16. Neuromuscul Disord. 2011. PMID: 21763136 No abstract available.

9

The third international meeting on genetic disorders in the RAS/MAPK pathway: towards a therapeutic approach.

Korf B, Ahmadian R, Allanson J, Aoki Y, Bakker A, Wright EB, Denger B, Elgersma Y, Gelb BD, Gripp KW, Kerr B, Kontaridis M, Lazaro C, Linardic C, Lozano R, MacRae CA, Messiaen L, Mulero-Navarro S, Neel B, Plotkin S, Rauen KA, Roberts A, Silva AJ, Sittampalam SG, Zhang C, Schoyer L. Korf B, et al. Among authors: denger b. Am J Med Genet A. 2015 Aug;167A(8):1741-6. doi: 10.1002/ajmg.a.37089. Epub 2015 Apr 21. Am J Med Genet A. 2015. PMID: 25900621 Free PMC article.

10

Developing a Process for Getting Patient and Caregiver Input on Clinical Practice Guidelines [Internet].

Khodyakov D, Kinnett K, Denger B, Grant S, Armstrong C, Martin A, Coulter I. Khodyakov D, et al. Among authors: denger b. Washington (DC): Patient-Centered Outcomes Research Institute (PCORI); 2020 Jun. Washington (DC): Patient-Centered Outcomes Research Institute (PCORI); 2020 Jun. PMID: 37561885 Free Books & Documents. Review.

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