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Leigh syndrome global patient registry: uniting patients and researchers worldwide.
Orphanet J Rare Dis. 2023 Sep 4;18(1):264. doi: 10.1186/s13023-023-02886-0.
Orphanet J Rare Dis. 2023.
PMID: 37667390
Free PMC article.
Teamwork makes the dream work: functional collaborations between families, scientists, and healthcare providers to drive progress in the treatment of Leigh Syndrome.
Moreira JD, Smith KK, Zilber S, Woleben K, Fetterman JL.
Moreira JD, et al. Among authors: woleben k.
Orphanet J Rare Dis. 2023 Nov 16;18(1):355. doi: 10.1186/s13023-023-02871-7.
Orphanet J Rare Dis. 2023.
PMID: 37974220
Free PMC article.
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