The transition experience of epilepsy patients/families: results of a telephone survey

Axone. 1998 Dec;20(2):31-3.

Abstract

Little has been written about the transition experiences of persons with epilepsy and their families. The results of the survey presented in this report support the notion that transition from pediatric to adult care for persons with chronic illness can be very painful. The sadness produced by the ending of close relationships, and fear and uncertainty about the future are commonly experienced emotions at this time. Careful assessment and planning by the entire team coupled with cooperative efforts between adult and pediatric care providers are necessary to ensure a smooth and seamless transition from pediatric to adult epilepsy care.

MeSH terms

  • Adolescent
  • Adolescent Health Services / standards*
  • Adult
  • Attitude to Health*
  • Chronic Disease
  • Continuity of Patient Care / standards*
  • Epilepsy / psychology*
  • Epilepsy / therapy
  • Family / psychology*
  • Hospitals, Pediatric / standards*
  • Humans
  • Needs Assessment
  • Ontario
  • Surveys and Questionnaires