Enabling our instruments: accommodation, universal design, and access to participation in research

Arch Phys Med Rehabil. 2000 Dec;81(12 Suppl 2):S5-9. doi: 10.1053/apmr.2000.20618.


The objective of this article is to discuss problems related to full participation of people with disabilities in health services and health outcomes research. To show the problems and to suggest solutions, we offer examples from personal research experiences (ours and colleagues'), as well as from published literature, requirements of research agencies, web and news sources, and research participants' feedback. A combination of formal and informal processes can be used to enable future instruments and methods. There are ethical, legal, and methodologic imperatives for research participation enablement.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, Non-P.H.S.
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Activities of Daily Living
  • Data Collection / methods
  • Disabled Persons / rehabilitation*
  • Language
  • Locomotion
  • Outcome Assessment, Health Care / methods
  • Outcome Assessment, Health Care / organization & administration*
  • Patient Selection
  • Psychometrics / methods*
  • Quality of Life
  • Time Factors
  • United States