Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion

Dev Med Child Neurol. 2001 Feb;43(2):76-82. doi: 10.1017/s0012162201.


The purpose of this study was to describe problems and resources of adults with cerebral palsy (CP) with special emphasis on locomotion. A questionnaire concerning demographic facts, locomotion, musculoskeletal problems, and present physical activity was mailed to 363 adults with CP. Two hundred and twenty-one adults, (125 male and 96 female; mean age 36 years, range 20 to 58 years) answered the questionnaire. Seventy-seven per cent reported problems with spasticity. Eighty-four per cent lived in their own apartments, with or without home services. Twenty-four per cent worked full-time and 18% had full disability pension. Twenty-seven per cent had never been able to walk, 64% could walk with or without walking aids, 35% reported decreased walking ability, and 9% had stopped walking. Eighty per cent reported contractures and 18% had pain every day. Approximately 60% were regularly physically active, and despite their disability, 54% considered that they were not limited in their ability to move about in the community.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living
  • Adult
  • Cerebral Palsy / complications*
  • Cerebral Palsy / rehabilitation
  • Disabled Persons*
  • Employment
  • Female
  • Health Surveys
  • Humans
  • Locomotion*
  • Male
  • Middle Aged
  • Motor Skills Disorders / etiology
  • Quality of Life