The lived experience of having a neobladder

West J Nurs Res. 2003 Apr;25(3):294-316; discussion 317-21. doi: 10.1177/0193945902250417.


The purpose of this phenomenological qualitative study was to describe the lived experience of people who had a neobladder constructed. Men and women with direct and personal knowledge of the experience were interviewed. Analyses of transcribed verbatim narratives were conducted. Major and minor themes with clustered subthemes were identified. Selected themes included diagnosing cancer, detesting the idea of the bag, coping with stressful events, managing tubes and drains, responding to incontinence, keeping the neobladder healthy, and seeing cancer as a lifelong threat.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Aged
  • Attitude to Health*
  • Defecation
  • Female
  • Humans
  • Life Change Events*
  • Male
  • Middle Aged
  • Pain, Postoperative / complications
  • Reconstructive Surgical Procedures / instrumentation
  • Reconstructive Surgical Procedures / psychology*
  • Reproducibility of Results
  • Sexual Behavior
  • Smoking
  • Stress, Physiological / complications
  • Surveys and Questionnaires
  • Urinary Bladder / abnormalities
  • Urinary Bladder / surgery*
  • Urinary Bladder Neoplasms / complications
  • Urinary Bladder Neoplasms / psychology
  • Urinary Bladder Neoplasms / surgery*
  • Urinary Catheterization
  • Urinary Incontinence / complications