Effects of a self-management course for patients with systemic lupus erythematosus

J Adv Nurs. 2003 Jun;42(5):479-86. doi: 10.1046/j.1365-2648.2003.02647.x.


Background: For people living with systemic lupus erythematosus, the disease's potential variety and severity of manifestations and unpredictable course present challenges and repercussions in all arenas of life.

Aim: A quasi-experimental study was conducted to examine the effects of a systemic lupus erythematosus self-management course for Korean patients on fatigue, coping skills, self-efficacy, depression, pain and disease activity.

Methods: In a two-group pre- and post-test design, a total of 41 participants were assigned to the experimental group (21 participants) and to the control group (20 participants). The experimental group received six weekly 2-hour sessions for groups of 10-15 literate adults of all ages, while the control group did not receive any intervention. Outcome measures included fatigue, coping skills, self-efficacy, depression, pain and disease activity.

Results: Patients who participated in the self-management course showed significant improvement in fatigue (P = 0.049), coping skills (P = 0.007), self-efficacy (P = 0.001), and depression (P = 0.025). There were no significant changes in pain and disease activity after the intervention.

Conclusions: The systemic lupus erythematosus self-management course had effects in reducing fatigue and depression and improving coping skills and self-efficacy. This course is potentially a good nursing intervention that can be offered in community settings.

Publication types

  • Evaluation Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Adolescent
  • Adult
  • Case-Control Studies
  • Depression / etiology
  • Depression / nursing*
  • Fatigue / etiology
  • Fatigue / nursing*
  • Humans
  • Korea
  • Lupus Erythematosus, Systemic / complications
  • Lupus Erythematosus, Systemic / nursing*
  • Lupus Erythematosus, Systemic / psychology
  • Middle Aged
  • Program Evaluation
  • Self Care / methods*