Toward assessing family outcomes of service delivery: validation of a family quality of life survey

J Intellect Disabil Res. 2003 May-Jun;47(Pt 4-5):367-84. doi: 10.1046/j.1365-2788.2003.00497.x.


Background: The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL.

Methods and results: A total of 1197 respondents participated in a national field test. Through factor analysis, the survey was refined in several ways: (1) the preliminary 10-domain structure was reduced to a five-domain structure; (2) a total of 41 items were selected for the revised survey; and (3) wordings were clarified.

Conclusions: The implications for future research and practice are discussed.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Delivery of Health Care / standards*
  • Family / psychology*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Pilot Projects
  • Quality of Life*
  • Surveys and Questionnaires*