Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study

J Autism Dev Disord. 2003 Aug;33(4):395-402. doi: 10.1023/a:1025058711465.


The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.

MeSH terms

  • Adult
  • Autistic Disorder / economics*
  • Caregivers / economics*
  • Child
  • Child, Preschool
  • Cost of Illness*
  • Costs and Cost Analysis
  • Education, Special / economics
  • England
  • Female
  • Financing, Personal / economics
  • Health Expenditures / statistics & numerical data
  • Home Nursing / economics*
  • Humans
  • Male