Right not to know or duty to know? Prenatal screening for polycystic renal disease

J Med Philos. 1992 Aug;17(4):395-405. doi: 10.1093/jmp/17.4.395.


New dimensions in different ethical scenarios following genetic information require new medical-ethical Action Guides for physician-patient interaction. This paper discusses the ambiguity in moral choice between a "right not to know" and "a duty to know", regarding parental decision-making pro or contra selective abortion following prenatal screening for autosomal dominant polycystic kidney disease (Potter III) and related public policy issues.

Publication types

  • Case Reports

MeSH terms

  • Abortion, Legal
  • Adult
  • Blastocyst
  • Ethics, Medical
  • Female
  • Genetic Testing / legislation & jurisprudence*
  • Germany
  • Health Policy
  • Humans
  • Male
  • Middle Aged
  • Parents*
  • Patient Advocacy / legislation & jurisprudence
  • Polycystic Kidney, Autosomal Dominant / genetics*
  • Prenatal Diagnosis*
  • Preventive Medicine / legislation & jurisprudence
  • Truth Disclosure*