Health-related Quality of Life in Youth: A Comparison Between Adolescents and Young Adults With Uncomplicated Epilepsy and Healthy Controls

J Adolesc Health. 2003 Oct;33(4):252-8. doi: 10.1016/s1054-139x(03)00101-0.


Purpose: To describe health-related quality of life (HRQOL) in adolescents and young adults with uncomplicated epilepsy and to compare it with a random sample of the general population.

Methods: Young people, aged 13-22 years, meeting the criteria and registered in four Swedish hospitals answered questionnaires (n = 158/193) on HRQOL together with 282 (n = 282/390) random controls living in the same areas in Sweden. The instruments used were "I think I am," "Youth Self Report," "Sense of coherence," and "Family APGAR." Data were analyzed by using factorial analysis of variance.

Results: Girls had a poorer HRQOL than boys. The epilepsy group reported lower competence (i.e., they were less active, had lower social competence and poorer school achievement). Both groups had an overall positive self-esteem. Differences between girls in the epilepsy and control groups were small, whereas differences among boys were more evident. Older age was related to poorer HRQOL in both groups.

Conclusions: This study points out the importance of being observant of signs of stigmatization in adolescents with epilepsy.

Publication types

  • Clinical Trial
  • Comparative Study
  • Randomized Controlled Trial
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Analysis of Variance
  • Epilepsy / classification
  • Epilepsy / psychology*
  • Female
  • Humans
  • Male
  • Psychological Tests
  • Psychology, Adolescent
  • Quality of Life / psychology*
  • Self Concept
  • Sex Factors
  • Sickness Impact Profile
  • Sweden