Involving users with learning difficulties in health improvement: lessons from inclusive learning disability research

Nurs Inq. 2004 Mar;11(1):54-64. doi: 10.1111/j.1440-1800.2004.00197.x.


In this paper the author considers the lessons to be drawn from what is termed "inclusive" learning disability research for user involvement around health improvement. Inclusive learning disability research refers to research where people with learning difficulties (intellectual disability) are involved as active participants, as opposed to passive subjects. There is by now a considerable body of such research, developed over the past 25 years. From the review, the author draws attention to areas which can inform practice in involvement of users in a way that adds value.

Publication types

  • Review

MeSH terms

  • Decision Making, Organizational
  • Health Policy
  • Health Services Research / organization & administration
  • Humans
  • Information Services / organization & administration
  • Intellectual Disability* / psychology
  • Intellectual Disability* / rehabilitation
  • Learning Disabilities* / psychology
  • Learning Disabilities* / rehabilitation
  • Needs Assessment
  • Paternalism
  • Patient Participation*
  • Persons with Mental Disabilities* / psychology
  • Persons with Mental Disabilities* / rehabilitation
  • Policy Making
  • Research Design
  • State Medicine / organization & administration
  • Total Quality Management / organization & administration*
  • United Kingdom