User perspectives of transitional care for adolescents with juvenile idiopathic arthritis

Rheumatology (Oxford). 2004 Jun;43(6):770-8. doi: 10.1093/rheumatology/keh175. Epub 2004 Mar 23.


Objectives: To gain insight into the transitional needs of adolescents with juvenile idiopathic arthritis (JIA) and to examine how these needs may be addressed within a structured programme of transitional care.

Methods: A qualitative study using focused group discussions was performed. Groups comprised (i) adolescents with JIA aged 12-18 yr, (ii) young adults with JIA aged 19-30 yr, (iii) parents of adolescents with JIA, and (iv) parents of young adults with JIA.

Results: Transitional needs included aspects of participants' physical, social, psychological and vocational lives. Participants (n = 55) called for developmentally appropriate care based upon shared decision-making, continuity of health professionals, and wider access to information and community services. Suggestions for improved care included individualized assessment of patient's holistic needs and increased transfer preparation.

Conclusions: These results provide a useful guide to transitional care and suggest an approach that is adolescent-focused and evidence-based.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adolescent Health Services / organization & administration*
  • Adult
  • Arthritis, Juvenile / therapy*
  • Attitude to Health
  • Child
  • Continuity of Patient Care / organization & administration*
  • England
  • Female
  • Focus Groups
  • Health Services Research
  • Humans
  • Male
  • Needs Assessment*
  • Professional-Patient Relations
  • Program Development