Changing perceptions of womanhood: living with Parkinson's Disease

Int J Nurs Stud. 2004 Jul;41(5):515-24. doi: 10.1016/j.ijnurstu.2003.12.004.


This study adopted a multiple case study design to develop our understanding of the experiences and adjustments made by women with Parkinson Disease in relation to womanhood. Nineteen women participated in this investigation telling their stories through a combination of individual interviews, group interviews, reflective diaries, reflective tapes and creative writing. Data were analysed using the framework of Intrapersonal, Interpersonal, Extrapersonal and Metapersonal health proposed by Boddy and Rice (Perspectives on Health and Illness, Dunsmore Press, Palmerston North, 1992). Women reported that major changes were required in their lives in each of these aspects of health. In particular women reported labile emotions, changing body images, changing lifestyles, changing relationships with partner, family and friends, increasing dependence, decreasing role fulfillment and the need for support versus increasing isolation. The findings are of particular relevance to nurses and other health professionals involved with women with Parkinson's Disease as well as social services and voluntary agencies.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living
  • Adaptation, Psychological*
  • Adult
  • Attitude to Health*
  • Body Image
  • Disabled Persons / psychology*
  • Female
  • Humans
  • Internal-External Control
  • Life Change Events
  • Life Style
  • Middle Aged
  • Nursing Methodology Research
  • Parkinson Disease / physiopathology
  • Parkinson Disease / psychology*
  • Quality of Life
  • Scotland
  • Self Care
  • Self Concept
  • Social Isolation
  • Social Support
  • Surveys and Questionnaires
  • Women / psychology*
  • Women's Health