Toward a model of quality of life for family caregivers of stroke survivors

Qual Life Res. 2004 Apr;13(3):625-38. doi: 10.1023/B:QURE.0000021312.37592.4f.


The important role of family caregivers in maintaining their disabled and elderly members in the community is becoming increasingly recognized. Caregiver research, for the most part, has explored burden and emotional distress as outcomes of the caregiving experience. Although there is a growing consensus among health-care researchers concerning the importance of quality of life (QoL) as an outcome, there is little research examining QoL of family caregivers. The purpose of this paper, therefore, was to construct a conceptual framework from which to study the QoL of family caregivers of stroke survivors. Findings from a review of studies addressing the QoL of these caregivers guided the development of the model. The components of the model include the caregiving situation, characteristics of the caregiver, and environmental factors, and their proposed relationships with QoL. This model provides a framework for investigating how the caregiving experience impacts on the caregiver's QoL.

Publication types

  • Research Support, Non-U.S. Gov't
  • Review

MeSH terms

  • Caregivers / psychology*
  • Cost of Illness*
  • Disabled Persons
  • Family / psychology*
  • Home Nursing / psychology*
  • Humans
  • Models, Psychological
  • Quality of Life*
  • Social Support
  • Stroke*
  • Survivors / psychology*