FACE facts: why human genetics will always provoke bioethics

J Law Med Ethics. 2004 Summer;32(2):267-75, 191. doi: 10.1111/j.1748-720x.2004.tb00473.x.

Abstract

Some people dispute the relative importance of issues in genetics and biotechnology for the future of bioethics, either because they think the problems are time-limited or because they give priority to issue of human rights and social justice in health care. In fact, the special historical standing of genetic issue s in bioethics reflects four overlapping sources of moral sensitivity which ar inherent in the stories that genetic science tells and raise paradigmatic justice concerns: the implications of new genetic knowledge for people's understanding of their familial roles, ancestral origins, community memberships, and ethnic affiliations. Beneath worries over "genetic privacy," "the therapeutic gap," and the "post-human," this constellation of basic wellspring which both insures and justifies a central place for genetics on the agenda of bioethics.

MeSH terms

  • Bioethical Issues
  • Bioethics*
  • Family
  • Genetic Predisposition to Disease
  • Genetic Research / ethics*
  • Genetic Testing / ethics
  • Genetics, Medical / ethics*
  • Humans