Physicians' experiences with demented patients with advance euthanasia directives in the Netherlands

J Am Geriatr Soc. 2005 Jul;53(7):1138-44. doi: 10.1111/j.1532-5415.2005.53354.x.


Objectives: To estimate the incidence of (compliance with) advance euthanasia directives of patients suffering from dementia in the Netherlands and to gain knowledge about the experiences of physicians.

Design: Retrospective interview study.

Setting: Physicians in the Netherlands.

Participants: Four hundred ten physicians.

Measurements: Physicians were interviewed about their demented patients who had an advance euthanasia directive. Nursing home physicians were interviewed more extensively.

Results: Approximately 2,200 demented patients with an advance euthanasia directive die annually after being treated by a physician who knows about this directive. In 76% of such cases, compliance with the directive was discussed, but euthanasia was seldom performed. In two-thirds of the cases of demented nursing home patients with an advance euthanasia directive, the physician was able to identify during the course of the disease a situation for which the patient had intended the directive. One-quarter of the nursing home physicians thought that their most recent patient suffered unbearably to a (very) high degree, and half of them thought that the patient suffered hopelessly to a (very) high degree. In three-quarters of the cases, the relatives did not want the nursing home physician to comply with the directive, but they did want to respect the patient's wishes by forgoing life-prolonging treatment, which occurred in approximately 90% of cases.

Conclusion: Most nursing home physicians think that the suffering of patients with dementia can be unbearable and hopeless as a consequence of dementia, but most physicians do not consider dementia to be grounds for euthanasia, unless perhaps the patient has an additional illness.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Advance Directives*
  • Aged
  • Aged, 80 and over
  • Attitude of Health Personnel
  • Dementia / psychology*
  • Euthanasia*
  • Female
  • Humans
  • Interviews as Topic
  • Male
  • Netherlands
  • Physicians / psychology*
  • Retrospective Studies