Daily occupations and well-being in women with limited cutaneous systemic sclerosis

Am J Occup Ther. Jul-Aug 2005;59(4):390-7. doi: 10.5014/ajot.59.4.390.

Abstract

Objective: This study investigated occupational performance, well-being (operationalized as general life satisfaction, domain-specific life satisfaction, and self-rated health), and perceived symptoms in women with limited scleroderma and healthy controls.

Methods: Interview-based and self-administered questionnaires were used with 36 women with limited scleroderma and 40 healthy women.

Results: In the scleroderma group, most of occupation problems were perceived in work and household chores. The women with scleroderma were mainly satisfied with self-care and least satisfied with household chores. Regarding domain-specific life satisfaction, the women were least satisfied with physical health and leisure. General life satisfaction showed the strongest relations to performance of self-defined occupations and satisfaction with leisure, whereas the strongest association with self-rated health was found for satisfaction with work. Fatigue was perceived as a dominant problem and was significantly associated with well-being. Furthermore, the women with scleroderma felt lower satisfaction with daily occupations and well-being than the healthy women.

Conclusion: Loss of occupations, low satisfaction with leisure, perceived fatigue, shortness of breath, and pain indicated poorer well-being in women with scleroderma and need to be focused on in occupational therapy interventions.

Publication types

  • Comparative Study

MeSH terms

  • Activities of Daily Living
  • Adult
  • Case-Control Studies
  • Fatigue / complications
  • Fatigue / psychology
  • Female
  • Humans
  • Interviews as Topic
  • Job Satisfaction*
  • Middle Aged
  • Occupations
  • Personal Satisfaction*
  • Quality of Life / psychology*
  • Raynaud Disease / complications
  • Raynaud Disease / psychology
  • Scleroderma, Systemic / complications
  • Scleroderma, Systemic / psychology*
  • Self Care
  • Sickness Impact Profile*
  • Sweden
  • Women, Working / psychology*