Transition to adulthood in congenital heart disease: missed adolescent milestones

J Adolesc Health. 2006 Jul;39(1):121-4. doi: 10.1016/j.jadohealth.2005.09.008.


Purpose: To determine whether adults with congenital heart disease (CHD) are better adjusted than adults with acquired heart disease (AHD).

Methods: Twenty-five adults with CHD completed the Patient Adjustment to Illness Self Report (PAIS-SR).

Results: CHD patients had good adjustment for Heath Care Orientation and Family Relations, but poorer adjustment for Vocational, Social and Domestic Environment, Sexual Relations, and Psychological Distress.

Conclusions: The needs of CHD patients are not being met.

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Aged
  • Data Collection
  • Family Relations*
  • Female
  • Health Services / statistics & numerical data
  • Heart Defects, Congenital / psychology*
  • Humans
  • Male
  • Middle Aged
  • Needs Assessment
  • Sexual Behavior
  • Stress, Psychological
  • Survivors / psychology