Patients and health professionals working together to improve clinical research: where are we going?

Eur J Cancer. 2006 Oct;42(15):2454-8. doi: 10.1016/j.ejca.2006.05.022. Epub 2006 Aug 10.


The pace of active involvement of patients in clinical research has increased over the last 10-15 years. Advocacy for this engagement between patients and health professionals is briefly traced, based on the author's experiences both as an independent advocate and as co-founder and chairman (1995-1999) of the Consumers' Advisory Group for Clinical Trials (CAG-CT). A brief history is outlined. As the benefits and minor drawbacks of collaborative working have become increasingly evident, attitudes have changed and methodologies have developed. A new professionalism in relationships with doctors is being sought: common vocabularies need to be defined. Some research governance problems are identified: forward thinking to solve them is advocated.

Publication types

  • Review

MeSH terms

  • Biomedical Research*
  • Breast Neoplasms / drug therapy*
  • Clinical Trials as Topic*
  • Female
  • Hormone Replacement Therapy
  • Humans
  • Male
  • Patient Participation / trends*
  • Professional-Patient Relations