European patient perspectives on the impact of psoriasis: the EUROPSO patient membership survey

Br J Dermatol. 2006 Oct;155(4):729-36. doi: 10.1111/j.1365-2133.2006.07405.x.


Background: EUROPSO (European Federation of Psoriasis Patient Associations) undertook a Europe-wide survey examining quality of life and patients' perspectives on treatment and their disease.

Objectives: To explore patients' perspectives of psoriasis on their lifestyle and well-being and to gain insight into the effectiveness of and satisfaction with currently available therapies for psoriasis.

Methods: Self-administered questionnaires (n = 50,500) were mailed to members of psoriasis patient associations in Belgium, the Czech Republic, Finland, France, Germany, Italy and the Netherlands.

Results: Responses were received from 18,386 patients (36%), of whom 17,990 had psoriasis. Mean age at onset of psoriasis was 30.5 years, 59% of respondents had self-reported moderate to severe psoriasis (3% or greater body surface area involvement) and 30% had been diagnosed with psoriatic arthritis. The mean Psoriasis Disability Index score was 12.2 (25% of the maximum score), increasing to 21 (44%) in patients with more than 10% body surface area involvement. The greatest impact was on activities of daily living, especially affecting clothing choice, bathing routine and sporting activities. Overall, 77% replied that psoriasis was a problem or a significant problem. While patients were satisfied with the information and care from their dermatologist (40% highly satisfied), available treatment options were less satisfactory, with over 70% reporting only low to moderate satisfaction.

Conclusions: This is the largest survey of people with psoriasis in Europe and shows that psoriasis has a profound impact on quality of life.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living
  • Adult
  • Age of Onset
  • Dermatologic Agents / therapeutic use
  • Europe
  • Female
  • Health Surveys
  • Humans
  • Life Style
  • Male
  • Psoriasis / drug therapy
  • Psoriasis / pathology
  • Psoriasis / psychology
  • Psoriasis / rehabilitation*
  • Quality of Life*
  • Severity of Illness Index
  • Treatment Outcome


  • Dermatologic Agents