Family and friends as respite providers

J Aging Soc Policy. 2006;18(3-4):127-39. doi: 10.1300/J031v18n03_09.

Abstract

Consumer-directed service options in home- and community- based care are increasingly available to adults with chronic conditions and cognitive impairments and to their family caregivers. Few studies, however, examine the experience of family caregivers who, when given a choice of providers of respite assistance (i.e., relief from the stress of providing constant care), prefer to hire family or friends rather than service providers. This study describes the in-home respite experience of family caregivers served by California's Caregiver Resource Centers "direct-pay" program who hire family or friends (n = 39) or service providers (n = 77) to provide in-home respite assistance. Findings revealed similarities between the two groups with few exceptions: caregivers who hired family or friends reported poorer physical health, were slightly more satisfied with the respite assistance, and received more hours of respite at a lower unit cost. These findings lend support to consumer-directed respite service options where family caregivers are given flexible alternatives that may act to remove barriers to respite service availability and use.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • California
  • Caregivers / economics
  • Caregivers / organization & administration*
  • Caregivers / psychology
  • Family*
  • Female
  • Friends*
  • Home Nursing / organization & administration
  • Humans
  • Male
  • Medicaid
  • Middle Aged
  • Respite Care / economics
  • Respite Care / organization & administration*
  • Respite Care / psychology