A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

Cardiol Young. 2007 Apr;17(2):151-7. doi: 10.1017/S1047951107000285. Epub 2007 Feb 26.


Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents.

Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics.

Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. MAIN MEASURES OF OUTCOME: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required.

Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said "yes", 43/253 (17.0%) "maybe", and 117/253 (46.2%) "no". Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk.

Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living / psychology*
  • Adolescent
  • Ambulatory Care Facilities
  • Child
  • Clinical Competence / standards*
  • Female
  • Follow-Up Studies
  • Heart Defects, Congenital / psychology*
  • Heart Defects, Congenital / therapy
  • Humans
  • Male
  • Patient Education as Topic*
  • Physician-Patient Relations
  • Prognosis
  • Psychotherapeutic Processes
  • Retrospective Studies
  • Risk Assessment
  • Risk-Taking*
  • Surveys and Questionnaires / standards*