Access to care for autism-related services

J Autism Dev Disord. 2007 Nov;37(10):1902-12. doi: 10.1007/s10803-006-0323-7. Epub 2007 Mar 19.


This paper identifies family characteristics associated with use of autism-related services. A telephone or in-person survey was completed during 2003-2005 by 383 North Carolina families with a child 11 years old or younger with ASD. Access to care is limited for racial and ethnic minority families, with low parental education, living in nonmetropolitan areas, and not following a major treatment approach. Service use is more likely when parents have higher stress. Families use a broad array of services; the mix varies with child ASD diagnosis and age group. Disparities in service use associated with race, residence and education point to the need to develop policy, practice and family-level interventions that can address barriers to services for children with ASD.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Asperger Syndrome / epidemiology*
  • Asperger Syndrome / rehabilitation
  • Autistic Disorder / epidemiology*
  • Autistic Disorder / rehabilitation
  • Child
  • Child Development Disorders, Pervasive / epidemiology*
  • Child Development Disorders, Pervasive / rehabilitation
  • Child, Preschool
  • Community Health Services / statistics & numerical data*
  • Ethnic Groups / statistics & numerical data
  • Female
  • Health Care Surveys / statistics & numerical data
  • Health Services Accessibility / statistics & numerical data*
  • Health Services Needs and Demand / statistics & numerical data
  • Health Services Research / statistics & numerical data
  • Healthcare Disparities / statistics & numerical data*
  • Humans
  • Intellectual Disability / epidemiology
  • Intellectual Disability / rehabilitation
  • Male
  • North Carolina
  • Socioeconomic Factors
  • Urban Population / statistics & numerical data
  • Utilization Review / statistics & numerical data