End-of-life decisions: family views on advance directives

Am J Hosp Palliat Care. 2007 Aug-Sep;24(4):300-7. doi: 10.1177/1049909107302296. Epub 2007 Jun 20.

Abstract

A cross-sectional survey was administered to family members of patients who died at 1 of the 5 Catholic institutions comprising Mercy Health Partners, a health care system in Ohio, to determine their opinions about patient and family participation in decisions about end-of-life care. Among 165 respondents, 118 (86%) of 138 agreed that the family was encouraged to join in decisions and 133 (91%) of 146 that their family member's health care choices were followed. Most agreed that nurses answered their questions (93%, 141/151) and that the doctor communicated well with family members (83%, 128/155). Seventy percent (107/152) indicated that their family member had at least 1 advance directive. There were no differences in whether health care choices were followed when patients with formal advance directives (92%, 92/100) were compared with patients without formal advance directives (88%, 35/40). A unique survey instrument can be used to measure family perceptions and opinions of participation in decisions about end-of-life care.

MeSH terms

  • Adolescent
  • Adult
  • Advance Directive Adherence / psychology
  • Advance Directives / psychology*
  • Aged
  • Attitude to Death
  • Attitude to Health*
  • Catholicism
  • Communication
  • Cross-Sectional Studies
  • Decision Making*
  • Family / psychology*
  • Female
  • Health Services Needs and Demand
  • Hospitals, Religious
  • Humans
  • Male
  • Middle Aged
  • Multi-Institutional Systems
  • Nursing Methodology Research
  • Ohio
  • Professional-Family Relations
  • Prospective Studies
  • Surveys and Questionnaires
  • Terminal Care / psychology*