Purpose: To identify factors which contribute to upper limb recovery, from the perspective of stroke survivors.
Method: A retrospective cross-sectional survey was administered by post to 220 stroke survivors with upper limb impairment who were more than 3 months post-stroke. The content and language for the questionnaire were drawn from a series of focus groups and in-depth interviews with stroke survivors (n = 29). Where possible items or composite scales were replicated or adapted from existing surveys.
Results: Many factors regarding the stroke survivors' commitment to recovery, the type and amount of exercise undertaken and their knowledge of how to progress were associated with self-reported upper limb recovery. The single most important factor was 'use of the arm in everyday tasks', which was independently responsible for more than 12% of the variance in recovery. 'Not enough movement to work with' was the second most important factor, representing the greatest barrier to recovery.
Conclusions: The findings of this survey highlight many practical day to day factors that may contribute to a stroke survivor's ability to advance the recovery of their upper limb. Stroke recovery services can use this information to tailor their services to ensure these practical concerns are addressed.