Clinical outcomes of Queensland children with cystic fibrosis: a comparison between tertiary centre and outreach services

Med J Aust. 2008 Feb 4;188(3):135-9.

Abstract

Objective: To evaluate and compare the clinical outcomes of children with cystic fibrosis (CF) managed primarily at a tertiary cystic fibrosis centre (CFC) with those treated at regional centres by local health care professionals and the cystic fibrosis outreach service (CFOS).

Design, setting and patients: Retrospective study of 273 children with CF born between 19 October 1982 and 19 February 2002 and with clinical data available between 1 January 2000 and 31 December 2002. Patients were grouped into CFC (n = 131) or CFOS (n = 142), with CFOS then further categorised into three groups depending on the level of care they received.

Main outcome measures: Pulmonary function, Pseudomonas aeruginosa status, height and weight z scores, and hospital admission rates.

Results: There were no significant differences in pulmonary function, P. aeruginosa status, or height and weight z scores between children managed by CFC or by CFOS. Children receiving more care at the CFC (level of care [LOC] 1 and 2) were more likely to have multiple hospital admissions than children receiving more care in regional areas (LOC 3 and 4) (P < 0.001).

Conclusion: The CFOS model provides effective delivery of specialised multidisciplinary care to children and adolescents living in rural and regional Queensland.

Publication types

  • Comparative Study
  • Evaluation Study

MeSH terms

  • Body Height
  • Body Weight
  • Child
  • Child Health Services / organization & administration
  • Cystic Fibrosis / diagnosis*
  • Cystic Fibrosis / therapy*
  • Delivery of Health Care*
  • Female
  • Humans
  • Male
  • Outcome Assessment, Health Care*
  • Queensland
  • Respiratory Function Tests
  • Retrospective Studies
  • Rural Health Services
  • Treatment Outcome