The use of focus groups in the development of the PROMIS pediatrics item bank

Qual Life Res. 2008 Jun;17(5):725-35. doi: 10.1007/s11136-008-9338-1. Epub 2008 Apr 22.


Purpose: To understand differences in perceptions of patient-reported outcome domains between children with asthma and children from the general population. We used this information in the development of patient-reported outcome items for the Patient-Reported Outcomes Measurement Information System Pediatrics project.

Methods: We conducted focus groups composed of ethnically, racially, and geographically diverse youth (8-12, 13-17 years) from the general population and youth with asthma. We performed content analysis to identify important themes.

Results: We identified five unique and different challenges that may confront youth with asthma as compared to general population youth: (1) They experience more difficulties when participating in physical activities; (2) They may experience anxiety about having an asthma attack at anytime and anywhere; (3) They may experience sleep disturbances and fatigue secondary to their asthma symptoms; (4) Their health condition has a greater effect on their emotional well-being and interpersonal relationships; and (5) Youth with asthma report that asthma often leaves them with insufficient energy to complete their school activities, especially physical activities.

Conclusions: The results confirm unique experiences for children with asthma across a broad range of health domains and enhance the breadth of all domains when creating an item bank.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adolescent
  • Asthma
  • Child
  • Databases as Topic*
  • Female
  • Focus Groups*
  • Humans
  • Male
  • Outcome Assessment, Health Care / methods*
  • Pediatrics*
  • Program Development / methods*
  • Quality of Life
  • Self Disclosure