The self-management experience of people with mild to moderate chronic kidney disease

Nephrol Nurs J. Mar-Apr 2008;35(2):147-55; quiz 156.

Abstract

This qualitative, exploratory study examined the self-management experiences of people with mild to moderate chronic kidney disease (CKD, Stages 1-3) to elicit participants' perceptions of health, kidney disease, and supports needed for self-management. Findings revealed a process of renegotiating life with chronic kidney disease, which encompassed Discovering Kidney Disease and Learning To Live With Kidney Disease. A number of themes were identified including searching for evidence, realizing kidney disease is forever, managing the illness, taking care of the self and the need for disease-specific information. The findings indicate participants with early CKD want to self-manage their illness in collaboration with health care providers. As well, people with early CKD need guidance and support from health professionals to successfully self-manage. Nephrology nurses are uniquely positioned to provide this support while collaborating with other care providers to facilitate self-management.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Aged
  • Attitude to Health*
  • Biopsy
  • Educational Status
  • Female
  • Humans
  • Kidney Failure, Chronic / diagnosis
  • Kidney Failure, Chronic / prevention & control
  • Kidney Failure, Chronic / psychology*
  • Male
  • Middle Aged
  • Models, Psychological
  • Needs Assessment
  • Nurse's Role / psychology
  • Nursing Methodology Research
  • Ontario
  • Patient Education as Topic / methods*
  • Qualitative Research
  • Self Care* / methods
  • Self Care* / psychology
  • Severity of Illness Index
  • Social Support
  • Surveys and Questionnaires