Inclusion in primary care for people with intellectual disabilities: gaining the perspective of service user and supporting social care staff

J Intellect Disabil. 2008 Jun;12(2):93-109. doi: 10.1177/1744629508090982.


The aim of this study was to gain service user and social care staff perspectives on the barriers facing people with intellectual disabilities when accessing primary healthcare. A qualitative mixed methods semi-structured approach involved the use of focus groups and individual interviews within the service users' homes. A purposive sampling strategy identified people using primary healthcare in the last 6 months (N = 6) with support from social care staff (N = 19). Three emergent themes were common to service users and carer staff: ;accessing the surgery', ;communication issues' and ;waiting around'. Other themes were unique to each group. Social care staff identified the ;attitudes and behaviour of primary healthcare staff' as sometimes problematic, and the importance of ;knowing the service user'. Service users identified ;feelings about going to the doctor', ;health education' and ;making changes'. Gaining these views is an important first step in improving access to primary healthcare.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Attitude of Health Personnel
  • Caregivers / psychology
  • Communication
  • Family Practice
  • Female
  • Focus Groups
  • Health Education
  • Health Services Accessibility*
  • Humans
  • Male
  • Middle Aged
  • Persons with Mental Disabilities / psychology*
  • Primary Health Care*
  • Scotland
  • Social Support*
  • Social Work*