Parent-child agreement across child health-related quality of life instruments: a review of the literature

Qual Life Res. 2008 Aug;17(6):895-913. doi: 10.1007/s11136-008-9350-5. Epub 2008 Jun 3.


Aim: To systematically review the literature published since 1999 on paediatric health-related quality of life (HRQL) in relation to parent-child agreement.

Methods: Literature searches used to identify studies which evaluated parent-child agreement for child HRQL measures.

Results: Nineteen studies were identified, including four HRQL instruments. The Pediatric Quality of Life Inventory (PedsQL) was most commonly used. Differences in parent-child agreement were noted between domains for different measures. The impact of child and parent characteristics were not consistently considered; however parents of children in a nonclinical sample tended to report higher child HRQL scores than children themselves, while parents of children with health conditions tended to underestimate child HRQL.

Conclusion: Despite increasing numbers of studies considering children's HRQL, information about variables contributing to parent-child agreement levels remains limited. Authors need to consistently provide evidence for reliability and validity of measures, and design studies to systematically investigate variables that impact on levels of parent-child agreement.

Publication types

  • Review

MeSH terms

  • Child
  • Child Welfare
  • Child, Preschool
  • Humans
  • Parent-Child Relations*
  • Psychometrics
  • Quality of Life / psychology*
  • Reproducibility of Results