Lay management of chronic disease: a qualitative study of living with hepatitis C infection

Am J Health Behav. 2009 Jul-Aug;33(4):376-90. doi: 10.5993/ajhb.33.4.4.

Abstract

Objectives: To examine management strategies and goals reported by people diagnosed with chronic hepatitis C.

Methods: We analyzed data from semistructured interviews (N = 42) and from electronic sources [illness narratives (N = 79) and Internet threaded discussions (N = 264)]. Line-by-line coding, comparisons, and team discussions generated catalogs of lay management strategies and goals. We analyzed code-based files to identify informants' selection of specific strategies for each goal.

Results: We classified lay management strategies into 3 categories: medical self-care, behavior change, and coping. These strategies were used selectively in addressing multiple goals, categorized as fighting the virus, strengthening the body, and managing consequences.

Conclusions: Results underscore the diversity of strategies for living with a disease characterized by uncertain prognosis and variable expression of symptoms.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adaptation, Psychological
  • Adolescent
  • Chronic Disease
  • Female
  • Health Behavior
  • Hepatitis C / drug therapy*
  • Humans
  • Interviews as Topic
  • Male
  • Midwestern United States
  • Self Care*
  • Surveys and Questionnaires
  • Viral Hepatitis Vaccines
  • Young Adult

Substances

  • Viral Hepatitis Vaccines