Parental stress associated with caring for children with Asperger's syndrome or autism

Pediatr Int. 2009 Jun;51(3):364-70. doi: 10.1111/j.1442-200X.2008.02728.x. Epub 2008 Oct 9.

Abstract

Background: The levels of parental stress among parents of children with Asperger's syndrome in comparison with parents of children with autism are unknown in the Japanese population.

Methods: The stress levels in Japanese parents caring for children with Asperger's syndrome were compared with the stress levels found in Japanese parents caring for children with autism using the Parenting Stress Index/Short Form.

Results: In a sample of 193 families, both groups had a significant increase in parental stress levels. In addition, strong evidence was obtained for the presence of higher levels of parental stress in the Asperger's group compared with the parents of the autism group after controlling for the impact of confounders, F(5,187) = 9.11, P = 0.003. The elevated levels of parental stress found in the Asperger's group appeared to be attributable to characteristics associated with the child's basic behavior. The potential mechanism, implications and strategies for further research are discussed.

Conclusion: There are significantly elevated parental stress levels in Japanese parents of children with Asperger's syndrome or autism. In addition, the total parental stress levels were significantly higher in parents of children with Asperger's syndrome than in parents of children with autism.

Publication types

  • Comparative Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Asperger Syndrome / therapy*
  • Autistic Disorder / therapy*
  • Child
  • Child Care / psychology*
  • Child, Preschool
  • Female
  • Humans
  • Infant
  • Japan / epidemiology
  • Male
  • Parents / psychology*
  • Stress, Psychological / epidemiology*