Validity of childhood autism in the Danish Psychiatric Central Register: findings from a cohort sample born 1990-1999

J Autism Dev Disord. 2010 Feb;40(2):139-48. doi: 10.1007/s10803-009-0818-0. Epub 2009 Sep 1.


The purpose of this study was to assess the validity of the diagnosis of childhood autism in the Danish Psychiatric Central Register (DPCR) by reviewing medical records from 499 of 504 total children with childhood autism born 1990-1999. Based on review of abstracted behaviors recorded in case records from child psychiatric hospitals, case status determination was performed using a standardized coding scheme. In 499 children diagnosed with childhood autism in the DPCR, the diagnosis could be confirmed in 469 children (94%). Of the 30 non-confirmed cases, five were classified by the reviewers as non-autistic cases and the remaining 25 cases were either classified with another ASD diagnosis or the specific diagnosis was not possible to determine.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.
  • Validation Study

MeSH terms

  • Autistic Disorder / diagnosis*
  • Autistic Disorder / epidemiology*
  • Child
  • Child, Preschool
  • Cognition Disorders / diagnosis
  • Cognition Disorders / epidemiology
  • Cohort Studies
  • Denmark / epidemiology
  • Humans
  • Incidence
  • Male
  • Pilot Projects
  • Population Surveillance
  • Psychiatric Status Rating Scales
  • Registries*
  • Severity of Illness Index