Reengagement in meaningful occupations during the transition from hospital to home for people with acquired brain injury and their family caregivers

Am J Occup Ther. 2009 Sep-Oct;63(5):609-20. doi: 10.5014/ajot.63.5.609.

Abstract

Objective: To explore people's lived experiences of reengagement in meaningful occupations during the hospital-to-home transition phase after acquired brain injury (ABI).

Method: Participants included 20 people with ABI and 18 family caregivers. On the basis of a phenomenological approach, data collection entailed in-depth semistructured interviews at predischarge and 1 and 3 months postdischarge. Thematic analysis of interview transcripts involved open, axial, and selective coding techniques.

Results: Two primary themes emerged from the analysis: desired versus actual participation and struggle for independence. Theme 1 depicts the key occupations of importance to people and their caregivers during transition and explores desired and actual participation in occupations. Theme 2 highlights the struggle to regain independence and the differing perspectives of the 2 participant groups concerning this process.

Conclusion: Clinical practice implications relate to client-centered goal setting, contexts and environments in which therapy occurs, and provision of information to patients and families.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living* / psychology
  • Adolescent
  • Attitude to Health
  • Brain Injuries / nursing
  • Brain Injuries / rehabilitation*
  • Caregivers / psychology*
  • Continuity of Patient Care / organization & administration*
  • Female
  • Humans
  • Interpersonal Relations
  • Life Style
  • Male
  • Middle Aged
  • Patient Discharge
  • Social Environment
  • Social Support
  • Young Adult