Experiences of follow-up after treatment in patients with prostate cancer: a qualitative study

BJU Int. 2010 Oct;106(7):998-1003. doi: 10.1111/j.1464-410X.2010.09292.x. Epub 2010 Mar 9.


Objective: To develop an understanding of experiences of follow-up in patients with prostate cancer, to seek explanations as to why men's needs might not be well met, and explore views on the possible role of primary care in follow-up. The experiences of these patients, and views on the delivery of follow-up care, have been relatively neglected compared to those diagnosed with other cancers.

Patients and methods: In all, 35 patients were recruited from 20 practices across three regions in the UK. Maximum variation was sought by purposely sampling by age (59-82 years), treatment, length (0.75-14 years) and mode of follow-up.

Results: Patients' descriptions of the content and organization of follow-up showed the shortcomings of follow-up, which included system failings causing patients to be lost to follow-up, and unmet psychosexual needs. Patients were mainly positive about the prospect of follow-up taking place outside the hospital setting. However, some expressed concerns about current follow-up practices and suggested several improvements that need considering if primary care were to take a greater role.

Conclusion: This study identified some general deficiencies with the current system of follow-up, and our data indicate that primary care could have a role in addressing some of these.

Publication types

  • Multicenter Study

MeSH terms

  • Aged
  • Aged, 80 and over
  • Attitude to Health*
  • Continuity of Patient Care / standards*
  • Delivery of Health Care / organization & administration
  • Delivery of Health Care / standards*
  • Family Practice
  • Follow-Up Studies
  • Humans
  • Male
  • Middle Aged
  • Needs Assessment
  • Patient Satisfaction*
  • Prostatic Neoplasms / psychology*
  • Prostatic Neoplasms / rehabilitation*
  • Qualitative Research