Aim: This paper is a report of a study conducted to compare the effectiveness of qualitative methodology search strategies with subject-specific (health-related quality of life) search strategies in the retrieval of qualitative patient-reported data of the impact of pressure ulcers on health-related quality of life.
Background: Methods to locate qualitative patient-reported health-related quality of life research data electronically have undergone little replication and validation. A major problem in searching for this type of data is that it is reported in accounts of both primary qualitative research as well as mixed methods research.
Data sources: We combined five search strategies with terms for pressure ulcer and searched seven electronic databases from inception to October 2007.
Methods: The sensitivity, specificity, precision and accuracy for each search strategy were assessed.
Results: A subject-specific (health-related quality of life) search strategy, developed by us, had a high yield (100% sensitivity), but low specificity (<50%). The research methodology-based strategies had lower yields (sensitivity 72-83%) but high specificity (79-83%). Importantly, subject-specific search strategies identified all studies reporting qualitative patient-reported health-related quality of life data, whereas, research methodology-based strategies did not identify qualitative data reported in mixed method studies, making subject-based strategies more effective in retrieving qualitative patient-reported health-related quality of life research.
Conclusion: An important consideration in the health-related quality of life field is that qualitative data are reported in both qualitative and mixed methodology research and searching for this type data involves trade-offs between yield, sensitivity and specificity. Accurate indexing of subject-specific outcomes and methodology used in electronic databases and publications is also needed.