Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with CF

J Cyst Fibros. 2010 Dec;9(6):425-32. doi: 10.1016/j.jcf.2010.08.016. Epub 2010 Sep 16.


Background: Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF.

Methods: Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes.

Results: Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%).

Conclusions: Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adolescent
  • Adult
  • Attitude to Health*
  • Cost of Illness*
  • Cystic Fibrosis / physiopathology
  • Cystic Fibrosis / psychology*
  • Feedback
  • Female
  • Humans
  • Interviews as Topic
  • Male
  • Patient Compliance / psychology*
  • Perception
  • Psychology, Adolescent
  • Quality of Life
  • Self Care / psychology*
  • Social Support
  • Young Adult