Caregivers burden and needs in community neurorehabilitation

J Rehabil Med. 2010 Oct;42(9):818-22. doi: 10.2340/16501977-0612.


Objective: The aim of this study was to analyse the burden on caregivers of chronic neurological patients taking part in community neurorehabilitation programmes, and to describe caregivers' socio-demographic features and needs.

Subjects: A total of 118 pairs of chronic neurological patients and their caregivers.

Methods: Caregivers completed the Caregiver Burden Inventory, the Beck Depression Inventory, and an ad hoc socio-demographic questionnaire. The EuroQol-5D was used to measure patients' quality of life. Patients' cognitive status and functional independence status were assessed using the Mini-Mental State Examination and Barthel Index, respectively.

Results: Data from 105 patient-caregiver pairs were analysed. The majority of caregivers (mean age 63.01 ± 12.3 years) were women (58%); 72% were spouses/partners. The burden of care was distributed across the 5 domains of the Caregiver Burden Inventory as follows: objective burden (34%), developmental burden (25%), physical burden (22%), social burden (10%), emotional burden (9%). Care burden correlated negatively with patient's functional independence (p = 0.008) and quality of life (p = 0.000) and positively with caregiver depression (p = 0.000). Of the caregivers, 65.7% requested interventions aimed at reducing their burden.

Conclusion: There is a need to define structured interventions for assessing, preventing or managing problems related to stressful caregiving situations across the care continuum.

MeSH terms

  • Aged
  • Caregivers / psychology*
  • Chronic Disease
  • Cost of Illness*
  • Depression / diagnosis
  • Disabled Persons / psychology
  • Disabled Persons / rehabilitation
  • Female
  • Humans
  • Male
  • Middle Aged
  • Nervous System Diseases / rehabilitation*
  • Quality of Life
  • Social Support
  • Socioeconomic Factors
  • Spouses / psychology
  • Stress, Psychological / diagnosis
  • Surveys and Questionnaires