The National Spina Bifida Program transition initiative: the people, the plan, and the process

Judy K Thibadeau; Ann I Alriksson-Schmidt; T Andrew Zabel

doi:10.1016/j.pcl.2010.07.010

The National Spina Bifida Program transition initiative: the people, the plan, and the process

Pediatr Clin North Am. 2010 Aug;57(4):903-10. doi: 10.1016/j.pcl.2010.07.010.

Authors

Judy K Thibadeau¹, Ann I Alriksson-Schmidt, T Andrew Zabel

Affiliation

¹ Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, USA. csn2@cdc.gov

PMID: 20883880
DOI: 10.1016/j.pcl.2010.07.010

Abstract

This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

Published by Elsevier Inc.

Publication types

Research Support, U.S. Gov't, P.H.S.

MeSH terms

Comprehensive Health Care / organization & administration*
Continuity of Patient Care / organization & administration*
Humans
Models, Organizational*
Program Evaluation / methods*
Quality of Health Care*
Spinal Dysraphism / therapy*
Systems Integration*