Online self-management in rheumatoid arthritis: a patient-centered model application

Telemed J E Health. 2011 Mar;17(2):104-10. doi: 10.1089/tmj.2010.0116. Epub 2011 Mar 1.

Abstract

Objective: The aim of this study was to describe the online transformation of an empirically validated, clinic-based, self-management (SM) program for rheumatoid arthritis.

Materials and methods: A cognitive-behavioral framework served as the theoretical basis for the intervention. As with the clinic-based approach, the psychoeducational program included educational modules, weekly homework assignments, and self-evaluation. The dynamic online environment included secure communication tools to support a virtual community for the participants to garner peer support. In addition to peer support, weekly follow-up support was provided by a trained clinician via telephone. We describe the process and structure of the online self-management (OSM) intervention. Administrative issues including clinical monitoring and management, data collection, and security safeguards are considered. Utilization and management data are provided and explored for 33 initial subjects.

Results: Individuals who volunteer to participate in an online modality are eager to receive this home-based programming. They readily engaged with all aspects of the OSM program and experienced few difficulties navigating the environment.

Conclusion: An OSM site provides a convenient, effective, and securely maintained health service, once restricted to clinic settings. The OSM application can be used to extend the benefits of SM programs to broad target audiences and serves as a model for the emerging generation of Internet-based clinical management/delivery systems.

Publication types

  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Cognitive Behavioral Therapy*
  • Educational Measurement
  • Educational Status
  • Humans
  • Internet*
  • Learning
  • Models, Psychological
  • Models, Theoretical
  • Patient Education as Topic
  • Patient-Centered Care / methods*
  • Rheumatic Fever / prevention & control*
  • Rheumatic Fever / psychology
  • Self Care*
  • Surveys and Questionnaires