Assessing the need for a standardized cancer HUman Biobank (caHUB): findings from a national survey with cancer researchers

J Natl Cancer Inst Monogr. 2011;2011(42):8-15. doi: 10.1093/jncimonographs/lgr007.

Abstract

Background: Before developing a national standardized cancer HUman Biobank (caHUB), the National Cancer Institute sought feedback from the cancer research community.

Methods: NCI conducted an online survey (N = 727) about current biospecimen needs and reactions to creating a national resource cancer researchers and others.

Results: Most (56%) participants obtained biospecimens within their own institutions, and 63% wanted more information about their biospecimens. Large proportions reported difficulty obtaining biospecimens of adequate numbers (39%) and quality (47%). Low-quality biospecimens resulted in 60% questioning their findings and 81% limiting the scope of their work. Nine in every 10 (91.3%) respondents reacted positively to the idea of a national biospecimen resource, with 62% reporting that they would obtain biospecimens from it and 53% reporting that they would be willing to contribute biospecimens to it.

Conclusions: Initial reactions to caHUB were positive and seen as a feasible option to addressing respondents' research challenges. National Cancer Institute will need to address several concerns to assure its adoption, including standardization and sustainability.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Data Collection / methods
  • Data Collection / statistics & numerical data
  • Health Services Needs and Demand / statistics & numerical data*
  • Humans
  • National Cancer Institute (U.S.)
  • Neoplasms / genetics
  • Neoplasms / metabolism*
  • Neoplasms / pathology
  • Reference Standards
  • Research Design*
  • Research Personnel / statistics & numerical data
  • Tissue Banks / organization & administration
  • Tissue Banks / standards*
  • United States