"I'm supposed to be in charge": self-advocates' perspectives on their self-determination support needs

Intellect Dev Disabil. 2011 Oct;49(5):327-40. doi: 10.1352/1934-9556-49.5.327.

Abstract

In this qualitative interview study, we explored the perceptions of adults with intellectual disability regarding interpersonal or social supports needed to express their own self-determination. Specifically, 10 adults, all members of a self-advocacy group, were asked to discuss their understanding of the term self-determination and ways in which support staff have either supported or inhibited their self-determination. Ten themes characterizing supportive and impeding staff actions were identified. The need for greater exploration of environmental and social influences on self-determination is emphasized.

MeSH terms

  • Adult
  • Disabled Persons*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Personal Autonomy*
  • Qualitative Research
  • Social Support*