Demonstrating value: registries and beyond

Abstract

Patient registries have evolved to support goals within medical specialties that have traditionally fallen outside their core missions. Quality measurement and reporting can support payor advocacy, meet federal and state requirements, evolve practices into novel care environments, and facilitate coordination among multiple health care providers. Registries can additionally be of use in safety and event monitoring, and supporting comparative effectiveness research. Through integration with electronic health records, registries also serve as a vehicle for the delivery of guidelines and the implementation of decision support and care pathways.